Nathan is recovering well!!

We have been home for about 5 days now and he is doing great! Every day we see a huge improvement and he is playing and enjoying his time home with his parents and brother!

We had a cardiologist appointment a couple days ago and his heart is working great and he has no fluids.. He is still on some medicines, but that should stop in the next couple months..

Thanks for all your support and well wishes!!

We are now home.. Nathan is doing great.. Recovery now continues at home sweet home

Tubes, Lines, Needles are all out

All of the Chest tubes, IV's, and other invasive lines are now out. He is walking much more and he is eating a lot.. Still some fluid in the lungs, so we are just waiting for him to dry up from the liquid in his lungs..

Walked down the hall..

We had big progress... With all the lines and tube attached and all the monitors rolling behind him, Nathan walked up and down the hallway of the ICU.. He was so happy that he was able to do it.. Even though he was in pain, he was motivated by the fact that he got out of his room..

He is now resting....

He is out of the OR and is resting..

Nathan came out of the operating room and is stable.. A bit mad, but he did well with the procedure. They took out 3 chest tubes and added 1 more. The lung that was not draining has now drained and so things are progressing.

Nathan's Lungs are not draining - He is going back to the Operating Room

Nathan's right lung has fluid and it is not draining through the chest tubes.. He will be taken back to the operating room to put in another tube to drain his lungs..

Day 2 Progress..

On the first full day from Surgery, Nathan was coming out of Anesthesia.. All was progressing well until we had a scare.. Nathan started staring into space without reacting, moving or having any reaction. Even pain was not felt at all.. We all got very scared, but he slowly came out of it within 10-15 minutes.. Later he had slurred and soft speech... Eventually he fully came out of the episode..

They did some brain test (EEG) and we consulted with a neurologist and everyone feels it is the anesthetic wearing off.

The next day (today), Nathan was able to situp and even take a few steps.. He has a lot of tubes and lines in his body, so walking reallly is not possible yet, but he at least tried..

He also had 20-30 minute intervals where he was joking with us..

So, we believe Nathan is on his way to a full recovery and we will update everyone soon.

Thanks for all your emails and support!

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Nathan is now in the intensive care unit.

Nathan is out of surgery. All went well..

In Surgery

Nathan has just gone into Surgery. We spoke to the team and Dr. Burke (His surgeon) and he is on his way to begin the surgery.

Recovered from Cath

Nathan is doing great today.. They did a cath yesterday, did some work on his heart and checked everything before the Surgery.

Tomorrow is the Surgery...

Nathan received anesthesia and has started the cath

Rescheduled Surgery Date

Hi Everyone. Sorry I have not posted any new information, but we are now pretty sure when the Surgery will Take Place...

Nathan will have his Catherization on December 1 and his Heart Surgery on December 3rd.

Thanks for all your prayers and support!

New Surgery Date Scheduled.

The Catherization is now Scheduled for November 3rd and the Surgery for November 5th.

Nathan's Surgery has been Postponed

As everyone may know, Nathan was scheduled for his Heart Catherization for August 25th and then his Heart Surgery (Fontan Surgery) on August 27th.

However, Nathan had different plans... Nathan got a cold and was coughing.. So, since this surgery is not urgent and can wait, we decided with Miami Children's Hospital that we would wait until his coughing was completely gone and then reschedule.. We do not want any risks, no matter how small they are, to complicate his Heart Surgery..

Check back for updates. We will use this Blog, instead of email, to update everything regarding Nathan.